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Cousin marriages: 3 siblings suffer from rare congenital bone disease
By Kashif Zafar
Published: June 2, 2011
Doctors say the condition is incurable as the disease is genetic.
BAHAWALPUR:
A woman has appealed to the chief minister for help because three of her seven children are suffering from a severe congenital disease.
Nazirabad Colony resident Imtiaz Bibi, has seven children and three of them have been suffering from a severe bone disorder.
“They have been suffering since they were children and the doctors said that they couldn’t do anything to solve the problem because the disease was genetic,” Imtiaz Bibi said.
Imtiaz Bibi’s husband Malik Allah Datta is a day labourer and earns Rs200 a day. “We can barely feed the entire family so it has been nearly impossible to pay my children’s medical bills. They can’t walk and their knees are locked,” he said. “They were born this way and we haven’t been able to find any cure. My children have been suffering and we have taken them to several doctors but they don’t know what to do,” he added.
Datta’s youngest son, Shah Zaib, 18, said that he was a matric student who had been suffering from muscular problems all his life. “When I was younger, I could still walk even though I had disjointed knees but now the disease has gotten much worse,” he said. Zaib added that the disease constantly made him feel weak and he could barely move now. “The illness has progressed to my spine and I can’t even move my neck properly,” he added.
Munaza, 26, said that she had been suffering from the same disease for the past ten years. “My growth stopped when I was thirteen and my legs began to bend unnaturally. Now, I can’t walk or move my left hand and it gets worse every year,” she said. Munazza said that she and her siblings suffered the most during winter season. “The problem gets much worse in the winter because our entire bodies hurt constantly,” she said.
Aisha, 27, told reporters that she had been born with the same condition as her siblings and could barely move. “My family has had a very hard time caring for us and supporting us despite the fact that they have no money. We cannot even help out,” she added. Imtiaz Bibi said that they visited the OPD twice a month but the doctors did not treat her children. “They keep ignoring us and turning us away,” she said.
QMC Medical College principal Dr Mazhar said that the reason doctors were unable to find a cure was because the disease was genetic. “This is a common occurrence in cousin marriages. Congenital diseases often crop up in these cases and all these children have malformed spinal chords and locked legs. It is a congenital bone disorder and we can’t cure it. All we can do is to provide them with medicines and we have done that,” he said.
Imtiaz Bibi and Allah Datta have appealed the president, the prime minister and the Punjab chief minister to help them afford treatment for their children.
Genetical disease
A pathological condition caused by an absent or defective gene or by a chromosomal aberration. Also called hereditary disease, inherited disorder.
All humans can and do get sick so the argument if you marry outside your family your kids will not get the disease is dumb kids will inherit a disease regardless if its the cousins that are married or total strangers unless people start to marry machines or animals disease is a part of life i have visited hospital for sick kids in west and have seen 1000s of sick kids with different sickness and there parents are not cousins some are not even from same race.
examples of Pakistani doctors is a joke we all no this poor man doesn't have the money to pay the bills and doctors have simply decided its easier to tell them there is no cure then to try helping them cause he has no way of making a dollar out of this it says more about the pathetic doctor then marrying cousins.