Pakistan teenager with rare genetic disorder to get treated in Mumbai

[crimemaster_gogo]

DJ Gin! djinn!

 

[Viny]

Thanks to the community which s contributing for the treatment of this child saba but jaslok hospital is super rich why they can not wave off half of treatment fee ?

Probably that is strip down cost, given that they said medicine costs very high, like 1.7L for 100 tablets.
On top of that doctor fees, room and food charges, speech therapy and other theraphy charges etc.

Its a kind gesture that people have came forward to help and if the our border issues are solved, probably we might be able to provide much affordable and required health services to pakisthanis too.

 

[[Bregs]]

Modi's reaction.


1.

arey bhai koi toh thread baksh diya karo

 

[SarthakGanguly]

Pakistan teenager with rare genetic disorder to get treated in Mumbai

Saba Ahmed. Image Courtesy: bitgiving.com As a ramification of Wilson's disease, copper continually accumulates in Saba's vital organs, severely damaging her liver and brain. Doctors said that due to excess copper deposit she was not being able to walk without support or swallow anything. ​

India and Pakistan may not look eye to eye on many issues, but when it comes to aiding an ailing patient across the border, they surely unite. On Monday, Saba Ahmed (15), a resident of Karachi in Pakistan, will land in Mumbai for her ongoing treatment of a rare genetic condition – Wilson's disease. Barely four persons in a population of one lakh suffer from the disease.

Good Samaritans from Mumbai have collected close to Rs 2.5 lakh for Saba's treatment. A deposit money of Rs2 lakh has been collected by donations from 86 contributors to ensure that Saba gets admitted in a hospital. From a modest amount of Rs100 to a larger sum of Rs15,000, donors have come out in solidarity to help the girl.

The online crowd funding campaign 'Save Saba,' has managed to collect 23% of the total fund required for her treatment. In April, the community spent close to Rs7 lakh for 45 days of treatment at the hospital. This time around, she will be staying in the hospital for close to two months for which the hospital has quoted the treatment amount to be Rs10 lakh. Every hundred tablets for the treatment cost up to Rs1.7 lakh.

High dosages of wrong medication due to faulty diagnosis back home had worsened her condition. As a ramification of Wilson's disease, copper continually accumulates in Saba's vital organs, severely damaging her liver and brain. Doctors said that due to excess copper deposit she was not being able to walk without support or swallow anything.

Liver specialist at the hospital Dr Aabha Nagral said, "We are trying to put her on new drugs to ameliorate her condition. She will also be put on physiotherapy and speech therapy."

In April, Saba was in private-run Jaslok Hospital for treatment. Unfortunately, after Saba went back to Pakistan, her condition has deteriorated. "She is now being brought back. We have arranged for her travel through a kind donor but we need fund to get her admitted to the hospital," said a member from The Bluebells Community, an organisation that has started the crowd funding campaign for her. "We want a young life to be saved and also pass the message that borders might divide people, but love unites them. A child on either side of the border deserves the right to live, irrespective of which country he/she is being treated in."

Help Saba

Saba Ahmed suffers from a rare genetic anomaly, Wilson's disease. She needs Rs10 lakh for her treatment at Jaslok Hospital. Currently, Rs2,36,000 have been collected. If you wish to help Saba, log on to http://bitgi.co/savesaba and do your bit towards aiding her treatment.

Source:- Pakistan teenager with rare genetic disorder to get treated in Mumbai | Latest News & Updates at Daily News & Analysis

She is so beautiful. I also like her name. Bhagwan thik rakhe use.

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Good medical tourism.

 

[unbiasedopinion]

Allah na keray

I rather my people being healthy!

Physically they may be, but mentally it will take lot of time...

 

[kṣamā]

@Capt.Popeye I told you never under estimate morons, and we have one here.

 

[Metanoia]

Pakistan - 68 years since independence and can not even take care of her patients.

Average Pakistani: Free Kashmir!, Hindu Baniye!, Nuclear...nuclear....nuclear....nuclear....

Same Average Pakistani with medical problems (who cannot get treated in Pakistan because it sucks): India

 

[Capt.Popeye]

@waz , @Slav Defence ........ some more Muck to be cleared here......

 

[Capt.Popeye]

@WebMaster ; why do we get so much garbage dumped here ?

 

[Imran Khan]

thanks for those whom help her

 

[waz]

Thank you so much to the folks of India who contributed to her treatment and of course the health professionals who will try to help Saba. Get well soon my sister.

Do not troll this thread!

 

[Viny]

Need to check on this guy...

 

[Capt.Popeye]

Pakistan - 68 years since independence and can not even take care of her patients.

Average Pakistani: Free Kashmir!, Hindu Baniye!, Nuclear...nuclear....nuclear....nuclear....

Same Average Pakistani with medical problems (who cannot get treated in Pakistan because it sucks): India

Let us fervently hope that this changes; that Pakistani patients in need of Medical Care get it at home.
Till that happens, they are certainly welcome in India; and we will never brandish "Nukes" at them, please be assured of that.

 

[guyhandz]

Why Mr Aziz don't have a proper hospital in world best nuclear power ?

 

[Chanakya's_Chant]

Pakistani girl in Mumbai hospital for treatment of genetic disorder

Karachi resident Saba is admitted under the care of Dr Aabha Nagral, consultant gastroenterologist and liver specialist at Jaslok Hospital and Research Centre.​

Fifteen-year-old Pakistani girl Saba Ahmed, who suffers from a rare genetic condition – Wilson's disease — has been admitted inJaslok Hospital on Monday. According to treating doctors, Saba needs to be in the hospital for at least two months.

Karachi resident Saba is admitted under the care of Dr Aabha Nagral, consultant gastroenterologist and liver specialist at Jaslok Hospital and Research Centre.

Wilson disease is a genetic disorderwhere copper accumulates in tissues. This results in liver, neurological or psychiatric ailments. It is treated with medication which reduces copper absorption or removes excess copper from the body. However, a liver transplant may be needed in advanced cases.

Due to excess copper deposit, Saba was not able to walk without support or swallow anything. She has been accompanied by her mother Naziya.

Dr Nagral said, "We are planning some basic investigation tests. The main sites of copper accumulation are the liver and the brain; consequently, liver disease and neuropsychiatric symptoms are the main features that lead to diagnosis. Most patients also develop Kayser-Fleischer rings (KF rings) which are golden brown rings that appear to encircle the iris of the eye and are secondary to copper deposition. This patient needs lifelong medication and supportive treatment in the form of physiotherapy and speech therapy." Dr Nagral has already treated more than 150 children with such a disease.

"This girl is not responding to medicine available in the country; hence, we are importing the drugs from abroad. We will start Saba's medication in 4 days," Dr Nagral added.

According to the experts, in such patients if there is no timely intervention, the disease may be fatal. This disease has a prevalence of 1 in 30,000 population. There is lesser awareness in the medical fraternity about the disease, thereby often delaying its diagnosis.

The online crowd funding campaign 'Save Saba' has managed to collect 23% of the total fund required for her treatment. In April, the community spent close to Rs7 lakh for 45 days of her treatment at the hospital. This time around, she will be staying in the hospital for two months and for this the hospital has quoted Rs10 lakh for her treatment.

Source:- Pakistani girl in Mumbai hospital for treatment of genetic disorder | Latest News & Updates at Daily News & Analysis