Anybody else with Marfan's syndrome?

[KingRaj]

Does any other member here have Marfan's Syndrome?

I have a mild case of Marfan's Syndrome and have several of the symptoms like long fingers and I am also quite tall at 208cm.Plus I have somewhat flexible joints.
Fortunately my Marfan's is in a mild condition whereas my cousin has a bigger condition and even required a surgery for pectus excavatum.

I most probably got my condition from my mother who also has it who in turn got it from my grandpa who passed away two years back.

Does any other members' here have Marfan's and what are treatment they took?

 

[halupridol]

dear this is definitely not a place for finding comrades in disaster.

 

[KingRaj]

We

dear this is definitely not a place for finding comrades in disaster.

We can post such threads in members club.

 

[Babu999]

you need an expert advise

 

[Maarkhoor]

Does any other member here have Marfan's Syndrome?

I have a mild case of Marfan's Syndrome and have several of the symptoms like long fingers and I am also quite tall at 208cm.Plus I have somewhat flexible joints.
Fortunately my Marfan's is in a mild condition whereas my cousin has a bigger condition and even required a surgery for pectus excavatum.

I most probably got my condition from my mother who also has it who in turn got it from my grandpa who passed away two years back.

Does any other members' here have Marfan's and what are treatment they took?

How old are you if below 20 or 18 surgery will reduces chances of growth and please don't be sad about it you are perfect many big personalities have this syndrome like Abraham Lincoln, do some good exercise and eat well, I suggest you to play volleyball with good height you can become good player. God bless you and Please seek medical help also.

Regards,

 

[KingRaj]

How old are you if below 20 or 18 surgery will reduces chances of growth and please don't be sad about it you are perfect many big personalities have this syndrome like Abraham Lincoln, do some good exercise and eat well, I suggest you to play volleyball with good height you can become good player. God bless you and Please seek medical help also.

Regards,

Thanks.I am 26 years old and I stopped growing long back.
I did play basketball back in college.
But I am really not interested in sports and want to continue my job in HDFC.

you need an expert advise

Actually I am quite happy with my treatment and I was just wondering if any one else here has it.